Diet Soda Club by Chaz Hayden

Diet Soda Club by Chaz Hayden
Publisher:  Candlewick Press
Format:  Paperback-ARC
Number of pages:   320 pages
Publishing:   October 8th, 2024
Source:  Publisher 

Opening Lines:  "Most kids probably wake up to the sound of an alarm clock or the smell of breakfast cooking."  

Reed Beckett is the primary caregiver for his ten-year-old sister, Beatrice, who was diagnosed with Spinal Muscular Atrophy (SMA) at a young age.  Bea has been in and out of the hospital with recurrent pneumonias and Reed has always been by her side.  Their father died after a car accident, and their mom has been overwhelmed working double shifts at a bar.  Reed and Bea share a very special bond, his utmost priority is ensuring Bea is never left alone, even if it means sacrificing his schoolwork.

After Bea's latest stint in the hospital, they learn that as soon as she has recovered from her lung infection, she will need surgery to correct the scoliosis in her spine.  Struggling to process the news, their mom starts spending more and more time with her new boyfriend, Seth.  She even goes so far as to announce that she's spending the weekend away with Seth, leaving Reed responsible for all his sister's medications, breathing treatments, and daily care. When the weekend is over and their mother is still a no show, Reed begins to realize that she's left them to fend for themselves.

Reed takes up more of the slack from their mom's absence and begins to worry as there food and money is beginning to dwindle.  Also, there's the pending surgery for his sister which requires a five-thousand-dollar downpayment, an amount that seems unattainable.  When their mother still hasn't returned, Reed and Bea develop a system so that he can go back to school.  Reed gets up early to take care of her morning routine, during school, Bea will have access to his laptop so that he can call her, and Reed will skip lunch and head home to give Bea a bathroom break.  To raise money, Reed begins making and selling fake I.D.'s.  At first, he makes one to two but as news spreads, he begins to make more because they desperately need the cash in order to pay for their rent and to buy food.  To keep his side business a secret, he enlists the help of Helena, a previous friend who he had a falling out with in the past.  She has access to all the equipment that he needs and hopefully she'll help cover up his illegal activity.  At first it appears that Reed has found a solution to their money problems but keeping up the secrecy of their mom being absent possess to be a huge challenge.

I first heard about Diet Soda Club back in March when Candlewick Press had their Fall Fiction Preview.  The title and cover really piqued my interest and I wanted to know more.  Then the author, Chaz Hayden spoke during the event and provided a synopsis of his book.  He discussed having Spinal Muscular Atrophy and how he had always explored the idea about writing a book that included the caregiver's experience, expressing that he was hopeful that others will better understand SMA.  It was such a compelling plot, so I jumped at the chance for an ARC.

Beatrice is such an incredibly bright ten-year-old girl.  She never really gets down about spending too much time in and out of the hospital.  Sure, she has moments where she gets frustrated by a breathing treatment or scolds her older brother for spending all his time with her, but Bea is a fairly upbeat kid.  She's a whiz with computers (a mini hacker Reed would say) and better than even him at his math homework.  Reed is the worrier who takes everything on his shoulders.  He cares deeply for his sister and there really isn't anything that he wouldn't do for her.  They're both put into a difficult situation by their mom's negligence, yet somehow, they make the best of it.  Overall, this is the kind of story that will stick with you with characters that you won't be able to forget.  It's well written, providing positive representation of disability, and written by an author from their own personal experience.  Can't wait to check out Chaz's previous book, The First Thing About You next.        

   ** A huge thank you to the Candlewick Press for the paperback ARC in exchange for an honest review**